Thursday, March 28, 2013

Hi my name is Kristin and I'm really bad at updating!! PART 3

So continuing on! We had a follow up with the Neurosurgeon earlier this month and my little man did wonderful! Shunt looks great! Function is amazing! No follow ups for 6 months! I have a good feeling we're not going to be back in between either! Then came the Neurologists follow up. Again, he showed off and really impressed the doctor and nurses. Chatting away and flirting with those adorable eyes! Great news there too, no follow ups for............. drumroll please.........................ONE YEAR!!! YAY!!!

Now to present day, finally! Last night we headed to a caregiver night out for parents and caregivers of special needs families in the area. I was real hesitant to go. Sometimes I feel like we've been so lucky with how Eddie's been doing that we don't deserve to go to these things. I was so wrong though. I am really glad we went. We got to meet other families and I realized that there are so many resources that we will need as he gets older and faces more challenges. Plus I realized that today we may be doing so well but at any point things could change with a medically fragile kiddo. To look at Eddie he looks like every other one year old, but one infection or bump on the head in the wrong place, one missed cath or missed does of antibiotic could possibly bring a problem. One day he could have no pain and great function but he could grow too fast and get tethered spinal cord and need another surgery and could lose more function. Or we could never have any more major medical issues. We won't know but I'm glad that no matter what we've been through or will go through there is this support system of other parents out there that just get it. There's no pity party or "I'm so sorry's" We just get to talk about our triumphs and struggles and how cute our little ones are. Plus I've realized without this system we wouldn't have access to half the resources we do and therefore we wouldn't have the chance to fight as hard as we do for our little man!

So speaking of fighting for our little man. We are helping to organize a Walk and Roll in June here in Westfield, MA. All proceeds are going towards the Spina Bifida Association of Greater New England. The event is on June 15th, 2013 at Stanley Park in Westfield, MA our team is Team Warrior Eddie check out the website here; Team Warrior Eddie Walk N Roll to donate or join a team! We're also holding a bowling event to help support our team on May 4th, 2013 from 5:30-8:00pm at Shaker Bowl in East Longmeadow, MA. Tickets are $15.00! Check out Team Warrior Eddie's facebook page here; Team Warrior Eddie Facebook Page! We're selling T-shirts here; Team Warrior Eddie T-Shirt Orders  and bracelets also! We're very busy!!! Please help spread the word for the events! We'd love to get more teams signed up to walk also! If you're not from around the area check out local Walk N Roll's in your area!

This is the front and back of our bracelets for $2.00 each

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