Tuesday, June 19, 2012

A lot of news...

My Aunt was here for a visit from TN
My sister-in-law and Eddie

My adorable grandmother
Me and my "little" brother

So we've had a lot going on in the house the past couple of weeks!  I'll start with the Bowling Event we had last week. It was so much fun and we raised $600 dollars from it! I can't believe the amazing support we have! We are so lucky for the friends and family in our life! 

We also received the MRI results and although they weren't exactly what we had hoped the good news is that the shunt is working properly and still in place but has slipped down about 3cm bad news is since it's so mobile he'll probably need another surgery to suture it back into place.  I'm sad about this but hoping it won't be as major as the last one.  I'd hate to see him that uncomfortable again.  We'll see the neuro tomorrow for more info. Fingers crossed that if there is another surgery our hospital stay won't be long and hopefully we go straight to the pedi section and get to skip the PICU.  The PICU is no fun. 

Friday we had the VCUG test done.  It's when they fill his bladder with a catheter with contrast die and do xrays to see how he voids it. Check to see if he can void on his own and if there is any reflux into his kidneys. This was NO fun! Plus side he definitely has feeling "down there"!  He did not enjoy any of it! Especially having his legs held down.  They were so surprised how strong he was. Take that SB!  The results were kinda unhelpful.  The radiologists said that there was a small amount of reflux to the right kidney.  From what I hear this test isn't real reliable since you're forcing fluid up instead of down and while they are screaming (and he was purposely holding his bladder, he had no problem voiding once that catheter came out. They had to have someone come clean the room afterwards).  I'm hoping the little bit of reflux is just from all of that.  Plus he's never had a UTI and never had a problem on his kidney ultrasounds, so that's a positive sign! We have his urodynamics test this Friday and will have much better results then. Fingers crossed again!

Our "Warrior Eddie" team!

Saturday was the Walk N Roll for Spina Bifida in Canton, MA up near Boston.  We had so much fun, despite the 40 minutes of traffic on the way there! Leave it to MA to have traffic that barely moves that long for what..... NOTHING! A lane merge! Oh well, we still made it in time and had a fun little walk. Total funds raised by Team Warrior Eddie was over $1500! Thank you for everyone who donated! Next year the walk will be in Stanley Park so I hope to see all of you in this picture!

Bella with her teachers

Bella with her student teacher Miss Lyndsey

Bella and her other student teacher Miss Janyce

Bella and her "diploma"

Yesterday was Bella's preschool graduation, and let me tell you she is quite the performer!  She is hilarious! Singing loudly and at one point we caught her on stage mouthing "I'm just so happy I could cry" and then fake crying. She's too much! I was so proud of her a a little emotional about how big she's getting, and lucky me I get to do it all over again next year since she had one more year in preschool. Thank god! Yesterday was also Eddie's first day at the new job! Ahh it feels good to say it! I've kept from announcing it until everything was official, I didn't want to jinx anything! It's still with the same company but it's in a new position and a new location.  It's literally the perfect job for him and perfect hours for our family. It's also only 10 minutes from our home. He's very excited!

I'm also asking for everyone to keep my grandfather in their thoughts, he was rushed to the ER yesterday for a pancreatic attack.  They are keeping him there a few days so fingers crossed again for a healthy outcome!

Sooo, this week is busy too! Tomorrow we have a neuro appointment in the morning and a 4 month check-up in the afternoon. Friday is a trip to Shriners for the urodynamics test.

Ooohhmmmff {big sigh}..... I think that's everything! Sorry for such a long post today!

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