Tomorrow is MRI day again, not my favorite part of this whole SB world! Unfortunately Eddie has to work so I'm tackling this one on my own which totally freaks me out. Plus this time he'll be sedated like last time but last
time is was just an oral medication do less sedation but this time it's through an IV. Baby Eddie is a really tough "stick" so fingers crossed that the nurse won't have trouble getting the IV. We'll have our appointment with the neurosurgeon that afternoon so we'll know tomorrow how the shunt looks. Baby Eddie's been doing great so I'm optimistic that everything will look great. We also have a neurologist appointment next week so with the surgeon taking a look at his shunt an the neurologist checking out his Chairi we'll have all out based covered for a while! We also have an appointment with Shriners on the 21st and our PT will be there with us. We also have a call into Boston Children's to check out their SB program. We do like Shriner's but we'd like to see what their urology dept. has to say too. I'm also looking into adding a private PT/OT outside of the Early Intervention program so that he has a little extra at a facility, but we'll see what Shriners has to say first. Plus, I'm planning on adding a water therapy too. I think it's going to be a lot of running around but in the end I think it's going to be worth it. We really believe the more we can do for him now while he's learning to stand/move the better it'll be. The more he can do on his own without assistance (walkers/wheelchair) the more independent he can be.
Next weekend we are getting to meet up with another family whose son has SB. We met up on a group called United by Spina Bifida on Facebook and found out we don't live far from each other. Her son is a toddler so it'll be nice to chat with someone who is a few steps ahead of me in the SB world. Plus it gives me a chance to get some frozen yogurt at out local froyo shop and if you know me you know I'll take any excuse for froyo!
Best of all thanks to a bunch of awesome babysitters and "auntie" Nikki who came off a 24hr EMT shift to then babysit with her awesome mom, Eddie and I got to go to Boston to see a Red Sox game! It was awesome! My grandfather works for the Red Sox spring training camp and in true Tito (his nickname) fashion he got us on the field and everything! After the game the two of us headed to the North End (aka little Italy) and walked around a bit and had some pizza and picked up some cannolis and cupcake. (incidentally the dogs ate that night after we got home but that's another story!)
Well that's enough for tonight since the MRI is early tomorrow and I'm beat! Ill update about the MRI later this week!