So first off this will be one of two posts today. For the next few weeks I'll be posting our usual updates as well as an opportunity I received about posting about my experience with a new cath company and their services. I'm excited about this since in my experience especially when we first started cathing I was a little lost. These services and hopefully the outreach of the blog will assist others in their experience.
Now to the big updates!! Since we last spoke we here in the Gagnon household have had quite the array of events and catastrophes! I had a couple of painful weeks of mishaps with my IUD. (That's all I'll say on that since no one wants to hear about my birth control woes). Just as I was recovering from that came all the excitement! Big Eddie took off for a guys only camping trip with his Brother, Brother in law, Father and Uncle. He got to have quite the relaxing mini vacation. Meanwhile here at home I woke up to a vomit covered one year old in a vomit covered bed. Very exciting! He seemed to feel better as the day went on so I took him to the local little July 4th festival that's right at the park near my house. He seemed tired but not much else. We headed home and just as I walked in the door he so nicely aimed right at me and vomited all over me and himself! YAY more excitement! (How's that getaway Eddie?) He had a low fever also. So I called doctors and after a few annoying phone calls with on call barely doctors (thank you holiday weekend!) One that told me to move the shunt tubing away from his skin. I proceeded to yell "Don't you know what a shunt is?!?!" I hung up feeling unsatisfied! I decided since a shunt issue or UTI could both be possible we'd bring him into the ER. So my mother and I headed to the ER. Thank goodness for the wonderful staff there for not making me feel crazy! He ended up getting a crazy eczema flare-up while we were there which freaked me out more but the doctors and nurses calmed me by explaining that eczema is autoimmune which is a sign he just had a virus! Urine came back great so virus it was!
I woke up the next morning very dizzy. I chalked it up to dehydration since I had been to the chiropractor a couple of days before for neck pain. That was Sunday, by Monday morning I was so dizzy I couldn't stand it. I called the doctor and went it. They did a bunch of neuro type tests and decided that I maybe needed a MRI, the earliest though would be Tuesday night. I went home and laid down. When I woke up the left side of my face was numb as well as some tingling in my left arm. Eddie forced (I say forced since I really really didn't want to go) me to go to the hospital. Once there they preformed a ton of tests and two CT scans. One without contrast and one with. Doctor came back and said I had a significantly large blood clot in my left jugular right in front of my carotid artery! WHAT! Apparently it's rare to get one especially without trauma or a IV line there. So four days in the hospital (with a disgusting roommate.... no disgusting doesn't even begin to describe it!) and one mini meltdown later. I was discharged with a script for blood thinners. I'm now on them for at least a year since they have no idea how I got it in the first place! The excitement doesn't end there though! I was discharged on Thursday afternoon and Eddie brought me home, set me up to rest and packed up the kids for a fun night of fireworks at his parents house. A few hours later the phone rings and his mother called to tell me that Eddie crashed on the moped and was at the ER in Connecticut! AHHH, yes that would make 3 ER visits in less than a week! Jesus! I hopped in the car and drove down there to check on him and get the kids. So he ended up having a dislocated shoulder and a fracture in his shoulder where a piece of bone was chipped off and floated around. I couldn't even get mad at him, for the first time he wasn't doing some daredevil trick he was just taking a ride with his dad. Thank god they weren't going fast and he had a helmet on! Unfortunately he's been out of work since from both jobs. Thank god he went back to his full-time job yesterday on light duty!
Finances are beyond tough right now. So although our bank accounts are totally drained, we're alive, relatively healthy and recovering! I say this much more optimistically here then I am really feeling! I've had a few mini meltdowns this week. In all honesty I'm drained. I'm exhausted and defeated. We really try to be positive considering some of the circumstances we've been dealt. I try to see the bright side of things but it's also been very emotionally draining lately and looking at a double digit bank account balance is scary. We've worked so hard to make sure we were in a position where bills could be paid and therapies could be attended and we could get our children maybe not what they always want but what they always need. This week I'm so drained and scared that we won't be able to get them some needs either. I know we will work it out and figure it all out. We always do. Things do work out as long as you work but the unknown is always tough! I really appreciate having this outlet to write down my thoughts and our struggles knowing that there are others out there reading this going through it also or something similar. That connection through blogging is what makes it my little support group! Thanks for being there bloggies!
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